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   WHO AM I   

Where to start.   My name is Roz.  I'm 30-something. I'm disabled. I am a Brownie and Guide Leader and I volunteer one afternoon a week at my local archives.  I'm a distant-learning student with the University of Leicester.

My lovely health issues always seem to ensure they try and play up when i have plans to do things.  So, most of the time, it's mind over matter.

 

I have CRPS/RSD (Complex Regional Pain SyndromIe/Regional Sympathetic Dystrophy).  CRPS is classed as the most painful condition in the world. I see myself as lucky - I only have it in my right hand and forearm, but it can and does spread.  

 

I also have scholiosis.  I have been suffering from lower back pain for a long time now, and my pain consultant ordered an x-ray thinking it was wear-and-tear. 

 

The x-ray results came back - a bit of wear-and tear, but above  it was a curve!  I was then referred to a spinal specialist, and following an MRI, calculated the degree of my curve is between 36 and 39 degrees.

 

The spinal specialist reckon i've always had a curve, it's something i've grown up with.  Wr agreed surgery wasn't an option.  So, at the moment I manage it with physio and pain killers.

 

And, finally, depression.  What can I say, but it's a horrible roller coaster that i can't get off of.

 

In my spare time I enjoy geocaching, reading, and crafts

 

 

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